> As the understanding of genomics advances, you can stay up-to-date on your genome with the Nebula Library.
Then to the privacy policy:
> Nebula will store your Personal Information as long as your Account is open, unless you make a request for us to delete all or any of your Personal Information prior to the closing of your Account as described in this Policy. If you decide to close your Account, then Nebula will automatically destroy all Personal Information related to your account, including User Data, Survey Data, and Genetic Data.
So, my reading of all of this is aligned with how you and vatys have read it, too.
Yeah, I'd also be curious why they can't simply send it over to a company which "just so happened" to buy anonymous data, before Nebula "happened" to process your deletion request.
Yes, it's a bit hard to take them seriously as a US company. (I wonder would it matter if they were CA based instead of NY? Does the CCPA provide some better effective data protection - at least awareness, similar to the GDPR? And does NY have something similar?)
That of course is an option. It's in their privacy policy. Tbh that you could demand they delete your data when you were done with them is the entire reason I actually used them. There are definitely benefits to keeping your data with them though. The research they contribute to is useful and the relevance is easy to interpret through their client.
I'll probably delete everything off their site in the event it looks like they might get sold but for now I figure it's fairly well guarded and they keep most of it offline anyways.
As vatys explains in his longer comment: You are just as anonymous as the least anonymous person related to you.